Friday, March 30, 2012

What Can I See

The purpose of this video is to help people understand how a person with albinism sees the world around them. It highlights the four factors that affect the vision of a person with albinism - Photophobia, Nystagmus, inability to see find detail and poor depth perception.



http://www.youtube.com/watch?v=RrqdFKs2Hzw&hl=en

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Thursday, March 29, 2012

Tuesday, March 27, 2012

Albino Fulani ft Sugu, Belle9 & MwanaFA - Nafasi

He goes by the name of Albino Fulani who recently organized an outstanding benefit concert to raise funds to help kids with albinism by providing sun blocks to prevent skin cancer who also participated in Baby Powder the movie has just released a HIT new single NAFASI Featuring Sugu and Belle 9 on chorus and Mwana FA on the 2nd verse. The song which was officially released at Friday night show on East Africa Television (EATV) song talks about things they will do if they were given a chance. Enjoy!!!! Source: Babkubwa.ning.com



http://www.youtube.com/watch?v=RTjGPmbU-1w&hl=en

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Monday, March 26, 2012

The Perils of Dating in My 30's

"Where have all the good men gone...?" Just my musings on trying to date within my age range (moderately ancient, LMAO!)



http://www.youtube.com/watch?v=aMfR1lITwbo&hl=en

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Sunday, March 25, 2012

Hank's Adoption Announcement

This is Hank's adoption announcement. The question I've been getting the most is "Is he really Chinese?" Yes, he is. Hank has Albinism This site www.albinism.org does a much better job explaining it than I can! We were in China for 2 weeks. Hank was from the Suzhou Social Welfare Insitute (orphanage) which we were allowed to visit but we spent most of the time in the cities of Nanjing (for the China paperwork) and Guangzhou (for the US paperwork). I recently had to change the sound track. It was Solsbury Hill by Peter Gabriel but even though I wasn't making any money off this, they still flagged the video. His song, he gets to choose so fine...I'll deal with it. You Tube has pre-approved songs so I switched it to Creed's "With arms wide open" It doesn't synch up quite as well but it's better than taking the whole video down. Enjoy!



http://www.youtube.com/watch?v=TNJaZMiT94o&hl=en

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