Thursday, March 15, 2012

Ellie Marianna: The aboriginal year

Follow this link to our campaign page: onesmallstep.fpwr.org Our daughter, Ellie, was born 8 weeks early, and diagnosed with a rare genetic disorder called Prader-Willi Syndrome. In the ten days after her diagnosis, we raised over $3000, to fund research to find treatments and eventually a cure. This is the preview to our campaign video.



http://www.youtube.com/watch?v=nEXf6UYVxQU&hl=en

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