HPS 2009 A Goodbye Video and the Twins Sing (HQ)

Frankie (and maybe some others, please inform me) shot some great pictures taken during the conference and created a great slide-show video of the children present. This was shown at the end of the conference, and the twins delivered background music for it! Great job! ... HPS 2009 Hermasky Pudlak Syndrome Long Iceland New York albino albinism Blindness Pulmonary Fibrosis



http://www.youtube.com/watch?v=cK-T0kByv2Q&hl=en

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